Life with cystinosis is like running a marathon. It’s punishing. It's exhausting. It’s relentless. But it’s also hopeful. It requires believing that we can overcome obstacles—no matter how challenging—by putting one foot in front of the other, day after day, mile after mile.

Team Sofie is running the Philadelphia Marathon because we believe that brighter days are ahead. Thanks to the remarkable investments of the Cystinosis Research Foundation, the cure is within reach. If we go the distance together, we’ll end this disease once and for all.